• measure Major events

    Study:NTR
    Mode of collection:Interview
    Available measurements:
    Young Netherlands Twin Register  YC_DSC YC_ADHMRI
    0
    30 years
    Any major events occurred causing participant to judge their behavior differently than they would a month ago.
    Created March 28, 2023 Updated April 4, 2023
  • measure Strengths and Weaknesses of Attention-Deficit/Hyperactivity Disorder Symptoms...

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YC_DSC YE_ATTEF2 YC_ADHMRI
    0
    30 years
    The Strengths and Weaknesses of Attention-Deficit/Hyperactivity Disorder Symptoms and Normal Behavior Scale (SWAN) is an 18-item parent questionnaire for children and adolescents under 18 years old. This rating scale includes positive “weaknesses” and negative “strengths” scoring, assessing symptoms of Attention-Deficit/Hyperactivity Disorder.
    Created March 28, 2023 Updated April 4, 2023
  • measure Birth

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP1 YS_TRIP1_2
    0
    30 years
    Information on duration pregnancy, placenta and chorionicity, mode of delivery, complications around delivery, and incubator time.
    Created March 28, 2023 Updated April 4, 2023
  • measure Zygosity (questionnaire)

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQ14 YS_DHBQ16 YC_DSC YC_ADHMRI YS_TRIP1_2 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    The Zygosity questionnaire asks parents of twin pairs about the resemblance between the twins to determine whether the twin pair is mono- or dizygotic. This questionnaire consists of 10 questions: 6 items about physical similarities between the twin and 4 items about confusion in identifying the twins by parents and others.
    Created March 28, 2023 Updated April 4, 2023
  • measure Side jobs and household chores

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQP YS_DHBQ16 YS_DHBQ18 YC_BS2 YC_DSC YE_ATTEF3 YC_ADHMRI YE_COG12 YS_TRIP4 YS_TRIP7 YS_TRIP10
    0
    30 years
    Questions about side jobs (parttime work), volunteer work, household chores, and other main daytime activities.
    Created March 28, 2023 Updated April 4, 2023
  • measure Pregnancy - Problems

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YS_TRIP1_2
    0
    30 years
    Questions about problems during pregnancy such as eclampsia, iron deficiency, or twin-to-twin transfusion syndrome (TTTS)
    Created March 28, 2023 Updated April 4, 2023
  • measure School Situation

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YS_DT YE_COG12 YE_COG18 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Questions about the school situation including the type of school the children attend, whether twins attemd the same/different school/class, whether the child has ever skipped or repeated grades, and truancy.
    Created March 28, 2023 Updated April 4, 2023
  • measure Pubertal Development

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTIONBB1_1 YC_ACTIONBB1_2 YC_ACTIONBB2 YC_ACTIONBB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YC_ADHMRI YE_COG18 YS_TRIP1_2
    0
    30 years
    Questions about pubertal development including breast growth, menstruation, shaving, deepening of voice, and growth spurts
    Created March 28, 2023 Updated April 4, 2023
  • measure Medication Use

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire   Telephone
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTIONBB2 YC_ACTIONBB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP1 YS_TRIP2 YS_TRIP1_2 YS_TRIP3 YS_TRIP5
    0
    30 years
    Medication use incl. dosage, duration, and ATC code if available
    Created March 28, 2023 Updated April 4, 2023
  • measure Leisure Activities

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_3 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS1 YC_BS2 YC_DSC YE_ATTEF2 YC_ADHMRI YE_COG12 YS_TRIP4 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Questions about leisure time activities and hobbies and time spend on thereon
    Created March 28, 2023 Updated April 4, 2023
  • measure Physical Activities

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_3 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_FITNSS2 YE_ATTEF2 YC_ADHMRI YE_COG12 YS_TRIP4 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Questions about physical activity and sport
    Created March 28, 2023 Updated April 4, 2023
  • measure Zygosity (DNA)

    Study:NTR
    Mode of collection:MeasurementsAndTests   Biological sample/measurement
    Available measurements:
    Young Netherlands Twin Register  YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQ14 YS_DHBQ16 YC_ACTIONBB1_1 YC_ACTIONBB1_2 YC_ACTIONBB2 YC_ACTIONBB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF1 YE_ATTEF2 YE_ATTEF3 YC_ADHMRI YE_COG18 YS_TRIP1_2 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Zygosity typing based on micro-satellite markers, single nucleotide polymorphisms (SNP), or variable number (short) tandem repeats (VNTRs).
    Created March 28, 2023 Updated April 4, 2023
  • measure Pregnancy - Course Duration

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YE_COG18 YS_TRIP1 YS_TRIP1_2
    0
    30 years
    Questions about the duration and course of the pregnancy
    Created March 28, 2023 Updated April 4, 2023
  • measure Demographics

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTIONBB1_1 YC_ACTIONBB1_2 YC_ACTIONBB2 YC_ACTIONBB3 YS_VAL YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF1 YE_ATTEF2 YE_ATTEF3 YC_ADHMRI YS_DT YE_COG10 YE_COG12 YE_COG18 YS_TRIP1 YS_TRIP1_2 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Demographic information, including age and year of birth, biological sex and gender, country and place of birth, current zipcode, nationality, religion, educational attainment, spoken laguages, and information on multiple birth.
    Created March 28, 2023 Updated April 4, 2023
  • measure Diagnostic Interview Schedule for Children (DISC-IV)

    Study:NTR
    Mode of collection:Interview
    Available measurements:
    Young Netherlands Twin Register  YC_DSC YC_ADHMRI
    0
    30 years
    The Diagnostic Interview Schedule for Children (DISC-IV) is a highly structured diagnostic interview, designed to assess more than 30 psychiatric disorders occurring in children and adolescents, and can be administered by “lay” interviewers after a minimal training period.
    Created March 28, 2023 Updated April 4, 2023
  • measure Child Behavior Checklist (CBCL) 6-18

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_7 YS_10 YS_12 YC_ACTIONBB2 YC_ACTIONBB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_ATTEF2 YC_ADHMRI YS_TRIP4 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    The Child Behavior Check List (CBCL 6-18) is part of the Achenbach System of Empirically Based Assessment (ASEBA) taxonomy and is a validated instrument to assess psychiatric symptoms in both clinical and research settings. The ASEBA parent report version for youths 6 to 18 years of age potentially includes the syndrome scales Anxious/Depressed,...
    Created March 28, 2023 Updated April 4, 2023
  • measure Health problems and treatments

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTIONBB2 YC_ACTIONBB3 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG12 YE_COG18 YS_TRIP1 YS_TRIP2 YS_TRIP1_2 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Questions about health problems, diseases and disorders, incl. handicaps, and treatments (also for mental health problems) and hospitalization
    Created March 28, 2023 Updated April 4, 2023
  • measure School results and performance

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQ14 YS_DHBQ16 YC_BS1 YC_BS2 YC_DSC YE_ATTEF2 YC_ADHMRI YE_COG12 YS_TRIP4 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Questions about school results and performance at school
    Created March 28, 2023 Updated April 4, 2023
  • measure Youth Self-Report (YSR)

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YC_DSC YE_ATTEF2 YC_ADHMRI YE_COG12
    0
    30 years
    The Youth Self Report (YSR) is part of the Achenbach System of Empirically Based Assessment (ASEBA) taxonomy and is a instrument to assess psychiatric symptoms in both clinical and research settings. The ASEBA self report version for youths 6 to 18 years of age potentially includes the syndrome scales Anxious/Depressed, Withdrawn/Depressed, Somatic...
    Created March 28, 2023 Updated April 4, 2023
  • measure Friendship

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YC_DSC YE_ATTEF2 YC_ADHMRI YE_COG12 YS_TRIP4 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Questions about friends, friendships, and sibling interactions
    Created March 28, 2023 Updated April 4, 2023
You can also access this registry using the API (see API Docs).