• measure Pain Coping Inventory (PCI)

    Study:Generation R
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Main Cohort  2 years 3 years
    0
    30 years
    An adapted version of the Pain Coping Inventory was used to measure maternal response to pain in herself, using 9 questions that were answered on a 4-point Likert scale (1 = seldom or never, 2 = sometimes, 3 = often, 4 = almost, or always), such as ‘I do something that I find enjoyable’.
    Created May 3, 2023 Updated May 3, 2023
  • measure Illness Behavior Encouragement Scale (IBES)

    Study:Generation R
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Main Cohort  2 years 3 years
    0
    30 years
    This is a parent-report questionnaire that assesses parental response to children's illness behaviours. We assessed only 5 of originally 12 items that were answered on a 4-point Likert scale (1 = seldom or never, 2 = sometimes, 3 = often, 4 = almost, or always). Items refer to behaviour when the child has pain.
    Created May 3, 2023 Updated May 3, 2023
  • measure EuroQol- 5 Dimension (EQ-5D)

    Study:Generation R
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Main Cohort  Early pregnancy 2 months Covid questionnaires
    0
    30 years
    EQ-5D is an instrument which evaluates the generic quality of life. The EQ-5D includes one question for each of the five dimensions that include mobility, self-care, usual activities, pain/discomfort, and anxiety/depression. Each dimension has three levels of severity, being no problems, some problems, and extreme problems.
    Created May 3, 2023 Updated May 3, 2023
  • measure Pain List

    Study:Generation R
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Main Cohort  3 years 5-6 years
    0
    30 years
    The Perquin’s Pain List is used to measure child's chronic pain. The Perquin’s Pain List focused on the last 3 months, and comprises categorical yes/no-items regarding the experience and the characteristics of pain, such as the severity, duration, when, where, how often, and cause (rated on different Likert scales).
    Created May 3, 2023 Updated May 3, 2023
  • measure Infant Toddler Quality of Life (ITQOL)

    Study:Generation R
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Main Cohort  2 years
    0
    30 years
    Questions concerning child health, severity of pain, development and behaviors
    Created May 3, 2023 Updated May 3, 2023
  • measure Headache and Migraine

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2
    0
    30 years
    Presence, frequency, intensity, symptomology, and duration of severe headache/migraine
    Created March 28, 2023 Updated April 4, 2023
  • measure Physical health

    Study:TRAILS
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Population cohort  T1 T2 T3 T4 T5 T6 T7

    Clinical cohort  T1 T2 T3 T4 T5 T6
    0
    30 years
    Assessment of accidents and common health problems. Includes cuts, bruces, broken bones, allergies, infections, and pain.
    Created March 28, 2023 Updated March 28, 2023
You can also access this registry using the API (see API Docs).