| author | None |
| author_email | None |
| creator_user_id | 6c404c5c-dbec-4933-bc54-0b7656c773ba |
| dc_additional_info | In YC_DSC & YC_ADHMRI obtained through telephone interview |
| dc_analysis_unit | [] |
| dc_cohort | NTR |
| dc_mode_of_collection | SelfAdministeredQuestionnaire |
| id | 24c390f6-bb52-40ad-80f4-6622c1a41a77 |
| isopen | False |
| license_title | None |
| maintainer | None |
| maintainer_email | None |
| metadata_created | 2023-03-28T10:02:44.698055 |
| metadata_modified | 2023-04-04T12:50:07.871990 |
| name | 0e4545ac8d6f49ed1de6e84d469bd628 |
| notes | Information on duration pregnancy, placenta and chorionicity, mode of delivery, complications around delivery, and incubator time. |
| num_resources | 0 |
| num_tags | 0 |
| organization | {'id': '1c79e3cf-de04-4f4c-aa77-46aff3228db4', 'name': 'ntr', 'title': 'NTR', 'type': 'organization', 'description': 'The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioural traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioural traits and mental and physical health. In the CD2 portal, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR).', 'image_url': 'https://beta.data.individualdevelopment.nl/img/logo_ntr.png', 'created': '2023-03-06T15:49:42.299075', 'is_organization': True, 'approval_status': 'approved', 'state': 'active'} |
| owner_org | 1c79e3cf-de04-4f4c-aa77-46aff3228db4 |
| private | False |
| state | active |
| title | Birth |
| type | dataset |
| dc_constructs | [{'dc_construct': 'life history'}] |
| dc_labels | [{'dc_label': 'c-section'}, {'dc_label': 'labor'}, {'dc_label': 'natural birth'}, {'dc_label': 'type of twin'}] |
| measure_age_range | [{'measure_age_month': 0}, {'measure_age_month': 1}, {'measure_age_month': 2}, {'measure_age_month': 3}, {'measure_age_month': 4}, {'measure_age_month': 5}, {'measure_age_month': 6}, {'measure_age_month': 7}, {'measure_age_month': 8}, {'measure_age_month': 9}, {'measure_age_month': 10}, {'measure_age_month': 11}, {'measure_age_month': 12}, {'measure_age_month': 13}, {'measure_age_month': 14}, {'measure_age_month': 15}, {'measure_age_month': 16}, {'measure_age_month': 17}, {'measure_age_month': 18}, {'measure_age_month': 19}, {'measure_age_month': 20}, {'measure_age_month': 21}, {'measure_age_month': 22}, {'measure_age_month': 23}, {'measure_age_month': 24}, {'measure_age_month': 120}, {'measure_age_month': 121}, {'measure_age_month': 122}, {'measure_age_month': 123}, {'measure_age_month': 124}, {'measure_age_month': 125}, {'measure_age_month': 126}, {'measure_age_month': 127}, {'measure_age_month': 128}, {'measure_age_month': 129}, {'measure_age_month': 130}, {'measure_age_month': 131}, {'measure_age_month': 132}, {'measure_age_month': 133}, {'measure_age_month': 134}, {'measure_age_month': 135}, {'measure_age_month': 136}, {'measure_age_month': 137}, {'measure_age_month': 138}, {'measure_age_month': 139}, {'measure_age_month': 140}, {'measure_age_month': 141}, {'measure_age_month': 142}, {'measure_age_month': 143}, {'measure_age_month': 144}, {'measure_age_month': 145}, {'measure_age_month': 146}, {'measure_age_month': 147}, {'measure_age_month': 148}, {'measure_age_month': 149}, {'measure_age_month': 150}, {'measure_age_month': 151}, {'measure_age_month': 152}, {'measure_age_month': 153}, {'measure_age_month': 154}, {'measure_age_month': 155}, {'measure_age_month': 156}, {'measure_age_month': 180}, {'measure_age_month': 216}] |
| wave | [{'wave_ckan_id': '3a693dad9a44a89bc4eb0573d6772dc1', 'wave_cohort': 'NTR: Young Netherlands Twin Register', 'wave_cohort_ckan_id': '6f88a94b0bf79a8304ba604c655c08a9', 'wave_description': 'After registration of newborn twins, which is before the age of 12 months for 89% of the twins, the mother of a twin pair receives the first survey which focuses on conception (spontaneous or otherwise), information from parents themselves (demographics, height, weight), pregnancy (e.g. duration, smoking and drinking behaviors of both parents during pregnancy), birth and health (malformations) of the children shortly after birth. The mother is asked to fill in this survey, and this was done by the biological mother for almost all of surveys with others (stepmother, adoptive mother, some fathers) completing this survey in a small number of families (<0.05%).', 'wave_start_date_collection': '1987-01-01', 'wave_subject_codes': ['MC', 'MM', 'MF'], 'wave_title': 'YS_1', 'wave_universe': '0-12'}, {'wave_ckan_id': '0fdd2cc18b1fa8eaad6f87bff8762f98', 'wave_cohort': 'NTR: Young Netherlands Twin Register', 'wave_cohort_ckan_id': '6f88a94b0bf79a8304ba604c655c08a9', 'wave_description': 'The purpose of this project was to investigate the relation between Diagnostic and Statistical Manual of Mental Disorders (DSM-IV) diagnosis of ADHD and Child Behavioral Checklist Attention Problems (CBCL-AP) scores. Twins were selected based on their maternal CBCL-AP scores at ages 7, 10 and 12. Twin pairs were selected if at least one of the twins scored high on AP (affected pairs), or if both twins scored low on AP (control pairs). In families that agreed to participate, the mother of the twins was interviewed by telephone with the Diagnostic Interview Schedule for Children (DISC-IV). Other surveys that were collected are the CBCL, SWAN and YSR. Mouth swabs were used to collect buccal cell samples, from which DNA was extracted.', 'wave_end_date_collection': '2005-01-01', 'wave_start_date_collection': '2002-01-01', 'wave_subject_codes': ['MC'], 'wave_title': 'YC_DSC', 'wave_universe': '120-156'}, {'wave_ckan_id': 'b3fb4888024a37412eef809351edb5eb', 'wave_cohort': 'NTR: Young Netherlands Twin Register', 'wave_cohort_ckan_id': '6f88a94b0bf79a8304ba604c655c08a9', 'wave_description': 'This project is the second measurement of a longitudinal study on the source of individual differences of cognition, attention, and executive functioning from preschool to young adulthood. This project included the measurement five years after baseline and additionally recruited new twin pairs and siblings of the twin pairs. Behavioral data were collected with surveys filled in by parents and teachers (Conners, Child Behavior Checklist (CBCL), Strengths and Weaknesses of ADHD symptoms and Normal behavior Scale (SWAN), Teacher Report Form (TRF)) or filled in by children themselves (Youth Self Report (YSR)). To measure pubertal development, children filled in the Tanner questionnaire. Neurocognitive abilities were assessed with computerized ANT tasks, Flanker, Simon and Stroop. IQ was assessed with WISC-R. DNA was collected to determine zygosity and for genotyping SNP’S at candidate gene loci. Saliva was collected to assess cortisol concentrations.', 'wave_end_date_collection': '2004-01-01', 'wave_start_date_collection': '2002-01-01', 'wave_subject_codes': ['MC'], 'wave_title': 'YE_ATTEF2', 'wave_universe': '144'}, {'wave_ckan_id': 'da08497f2ef7d7868f6ef93b9ad8d22f', 'wave_cohort': 'NTR: Young Netherlands Twin Register', 'wave_cohort_ckan_id': '6f88a94b0bf79a8304ba604c655c08a9', 'wave_description': 'Within the ADHD-MRI project, the genetic and environmental influence on ADHD related neurobiological changes were investigated in monozygotic twins. Twins were selected based on their Child Behavior Checklist Attention Problems (CBCL-AP) scores obtained in the regular YNTR survey waves and divided into three groups: discordant pairs (one affected, one unaffected), concordant pairs (both affected) and control pairs (both unaffected). To determine the presence of ADHD, mothers of the participants were interviewed with the Diagnostic Interview Schedule for Children (DISC-IV). Additionally, they filled in two behavioral questionnaires (CBCL and Strengths and Weaknesses of ADHD Symptoms and Normal Behavior (SWAN)). The twins filled in the Youth Self Report (YSR). Based on the outcome of the interview and questionnaires, twin pairs that were found eligible for the MRI experiments were invited. Both structural and functional MRI (color-stroop and flanker tasks) were performed. DNA was collected to confirm zygosity.', 'wave_end_date_collection': '2007-01-01', 'wave_start_date_collection': '2003-01-01', 'wave_subject_codes': ['MC'], 'wave_title': 'YC_ADHMRI', 'wave_universe': '180'}, {'wave_ckan_id': '8fb82c775194379af04d33ee9bba53db', 'wave_cohort': 'NTR: Young Netherlands Twin Register', 'wave_cohort_ckan_id': '6f88a94b0bf79a8304ba604c655c08a9', 'wave_description': 'This project is the fifth measurement of a longitudinal study into the development of intelligence and problem behaviour (waves one and two not included in CD2) to which additional participants were recruited (twins with siblings and their parents). The test protocol consisted of a physical part and a psychological part. Physical measurements included cardiovascular functioning (assessed with the VU-AMS device), a physical examination with basic anthropometric measurements and the collection of saliva, DNA and fingerprints. The psychological part consisted of a series of cognitive tests that measured the following abilities: intelligence (Wechsler Intelligence Scale for Children, WISC-R or Revised Amsterdamse Kinder Intelligentie Test, RAKIT); inhibition (Stroop); spontaneous production of words (Verbal fluency); verbal learning and memory (California Verbal Learning Task, CVLT); emotion recognition (Reading the mind in the eyes); perceptual speed (Π inspection time task); spatial short term memory (n-back task and Corsi block tapping task). Furthermore, some questionnaires were administered to the participants (Autism-Spectrum Quotient, Tanner self-report), mothers of the twins (Social Responsiveness Scale) and research assistants (Test Observation form).', 'wave_end_date_collection': '2006-01-01', 'wave_start_date_collection': '2004-01-01', 'wave_subject_codes': ['MC', 'MM'], 'wave_title': 'YE_COG18', 'wave_universe': '216'}, {'wave_ckan_id': '203163b298931a92c85fd3c957f92ee6', 'wave_cohort': 'NTR: Young Netherlands Twin Register', 'wave_cohort_ckan_id': '6f88a94b0bf79a8304ba604c655c08a9', 'wave_description': 'The survey for triplets at age 1 is a 2-page survey that includes items on pregnancy, gestational age, smoking and alcohol consumption during pregnancy, and mode of delivery. The content of this survey is highly comparable with the survey 1 for twins (YS_1).', 'wave_end_date_collection': '2001-01-01', 'wave_start_date_collection': '1990-01-01', 'wave_subject_codes': ['MC'], 'wave_title': 'YS_TRIP1', 'wave_universe': '12'}, {'wave_ckan_id': '913e7214793a3495c2bfd111288b3077', 'wave_cohort': 'NTR: Young Netherlands Twin Register', 'wave_cohort_ckan_id': '6f88a94b0bf79a8304ba604c655c08a9', 'wave_description': 'In 2008, a combination of the triplet surveys at age 1 and 2 was sent to mothers of all triplets. Since 2009, the combined survey 1 and 2 served as the first survey for newly registered triplets. The combined survey comprises items on pregnancy, gestational age, smoking and alcohol consumption during pregnancy, mode of delivery, breastfeeding, attaining miles stones, and growth.', 'wave_start_date_collection': '2008-01-01', 'wave_subject_codes': ['MC', 'MM', 'MF'], 'wave_title': 'YS_TRIP1_2', 'wave_universe': '12-24'}] |
| resources | [] |
| tags | [] |
| groups | [] |
| relationships_as_subject | [] |
| relationships_as_object | [] |
| tracking_summary | {'total': 37, 'recent': 2} |
