author | None |
author_email | None |
creator_user_id | 6c404c5c-dbec-4933-bc54-0b7656c773ba |
dc_additional_info | In YC_DSC and YC_ADHMRI, mother-ratings were obtained from telephone interview. |
dc_analysis_unit | [] |
dc_cohort | NTR |
dc_mode_of_collection | SelfAdministeredQuestionnaire |
id | 6dbb9d52-c8a9-4613-b86d-5e5e80566ea5 |
isopen | False |
license_title | None |
maintainer | None |
maintainer_email | None |
metadata_created | 2023-03-28T10:01:09.525623 |
metadata_modified | 2023-04-04T12:48:50.936525 |
name | 9034815da4fad090bc58092451136b9e |
notes | Questions about bedroom sharing of twins/triplets and about wearing the same clothing as co-twin/triplet. |
num_resources | 0 |
num_tags | 0 |
organization | {'id': '1c79e3cf-de04-4f4c-aa77-46aff3228db4', 'name': 'ntr', 'title': 'NTR', 'type': 'organization', 'description': 'The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioural traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioural traits and mental and physical health. In the CD2 portal, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR).', 'image_url': 'https://beta.data.individualdevelopment.nl/img/logo_ntr.png', 'created': '2023-03-06T15:49:42.299075', 'is_organization': True, 'approval_status': 'approved', 'state': 'active'} |
owner_org | 1c79e3cf-de04-4f4c-aa77-46aff3228db4 |
private | False |
state | active |
title | Shared environment |
type | dataset |
dc_constructs | [{'dc_construct': 'life history'}] |
dc_labels | [{'dc_label': 'shared environment'}, {'dc_label': 'twin'}, {'dc_label': 'multiples'}, {'dc_label': 'triplet'}, {'dc_label': 'clothing'}, {'dc_label': 'similarity'}, {'dc_label': 'sharing'}, {'dc_label': 'bedroom'}] |
measure_age_range | [{'measure_age_month': 120}, {'measure_age_month': 121}, {'measure_age_month': 122}, {'measure_age_month': 123}, {'measure_age_month': 124}, {'measure_age_month': 125}, {'measure_age_month': 126}, {'measure_age_month': 127}, {'measure_age_month': 128}, {'measure_age_month': 129}, {'measure_age_month': 130}, {'measure_age_month': 131}, {'measure_age_month': 132}, {'measure_age_month': 133}, {'measure_age_month': 134}, {'measure_age_month': 135}, {'measure_age_month': 136}, {'measure_age_month': 137}, {'measure_age_month': 138}, {'measure_age_month': 139}, {'measure_age_month': 140}, {'measure_age_month': 141}, {'measure_age_month': 142}, {'measure_age_month': 143}, {'measure_age_month': 144}, {'measure_age_month': 145}, {'measure_age_month': 146}, {'measure_age_month': 147}, {'measure_age_month': 148}, {'measure_age_month': 149}, {'measure_age_month': 150}, {'measure_age_month': 151}, {'measure_age_month': 152}, {'measure_age_month': 153}, {'measure_age_month': 154}, {'measure_age_month': 155}, {'measure_age_month': 156}, {'measure_age_month': 168}, {'measure_age_month': 169}, {'measure_age_month': 170}, {'measure_age_month': 171}, {'measure_age_month': 172}, {'measure_age_month': 173}, {'measure_age_month': 174}, {'measure_age_month': 175}, {'measure_age_month': 176}, {'measure_age_month': 177}, {'measure_age_month': 178}, {'measure_age_month': 179}, {'measure_age_month': 180}, {'measure_age_month': 181}, {'measure_age_month': 182}, {'measure_age_month': 183}, {'measure_age_month': 184}, {'measure_age_month': 185}, {'measure_age_month': 186}, {'measure_age_month': 187}, {'measure_age_month': 188}, {'measure_age_month': 189}, {'measure_age_month': 190}, {'measure_age_month': 191}, {'measure_age_month': 192}, {'measure_age_month': 193}, {'measure_age_month': 194}, {'measure_age_month': 195}, {'measure_age_month': 196}, {'measure_age_month': 197}, {'measure_age_month': 198}, {'measure_age_month': 199}, {'measure_age_month': 200}, {'measure_age_month': 201}, {'measure_age_month': 202}, {'measure_age_month': 203}, {'measure_age_month': 204}, {'measure_age_month': 205}, {'measure_age_month': 206}, {'measure_age_month': 207}, {'measure_age_month': 208}, {'measure_age_month': 209}, {'measure_age_month': 210}, {'measure_age_month': 211}, {'measure_age_month': 212}, {'measure_age_month': 213}, {'measure_age_month': 214}, {'measure_age_month': 215}, {'measure_age_month': 216}] |
wave | [{'wave_ckan_id': 'd505a6b3862a18530a02bc064560232f', 'wave_cohort': 'NTR: Young Netherlands Twin Register', 'wave_cohort_ckan_id': '6f88a94b0bf79a8304ba604c655c08a9', 'wave_description': 'The Dutch Health and Behavior Questionnaire (DHBQ) was developed at the department of Biological Psychology of the VU University. It is a collection of standardized questions targeting multiple domains. The focus of the survey is on emotional and behavioral problems assessed by the Youth Self-Report (YSR), subjective wellbeing, lifestyle, exercise behavior, sedentary behavior, and family functioning.', 'wave_end_date_collection': '2004-01-01', 'wave_start_date_collection': '2004-01-01', 'wave_subject_codes': ['CC'], 'wave_title': 'YS_DHBQP', 'wave_universe': '168-216'}, {'wave_ckan_id': 'ed26c162acb020537709ae8becc88923', 'wave_cohort': 'NTR: Young Netherlands Twin Register', 'wave_cohort_ckan_id': '6f88a94b0bf79a8304ba604c655c08a9', 'wave_description': 'The Dutch Health and Behavior Questionnaire (DHBQ) was developed at the department of Biological Psychology of the VU University. It is a collection of standardized questions targeting multiple domains. The focus of the survey is on emotional and behavioral problems assessed by the Youth Self-Report (YSR), subjective wellbeing, lifestyle, exercise behavior, sedentary behavior, and family functioning. ', 'wave_end_date_collection': '2013-01-01', 'wave_start_date_collection': '2005-01-01', 'wave_subject_codes': ['CC'], 'wave_title': 'YS_DHBQ14', 'wave_universe': '168'}, {'wave_ckan_id': 'd8a6935d6790951263a80058b32a7419', 'wave_cohort': 'NTR: Young Netherlands Twin Register', 'wave_cohort_ckan_id': '6f88a94b0bf79a8304ba604c655c08a9', 'wave_description': 'The Dutch Health and Behavior Questionnaire (DHBQ) was developed at the department of Biological Psychology of the VU University. It is a collection of standardized questions targeting multiple domains. The focus of the survey is on emotional and behavioral problems assessed by the Youth Self-Report (YSR), subjective wellbeing, lifestyle, exercise behavior, sedentary behavior, and family functioning. From 2007, the survey includes the NEO Five Factor Inventory (NEO-FFI) and removed items regarding religion, stuttering, type of transportation to school, and hair/eye color.', 'wave_end_date_collection': '2013-01-01', 'wave_start_date_collection': '2005-01-01', 'wave_subject_codes': ['CC'], 'wave_title': 'YS_DHBQ16', 'wave_universe': '192'}, {'wave_ckan_id': '3515068706840217f2db928643f5a169', 'wave_cohort': 'NTR: Young Netherlands Twin Register', 'wave_cohort_ckan_id': '6f88a94b0bf79a8304ba604c655c08a9', 'wave_description': 'The Dutch Health and Behavior Questionnaire (DHBQ) was developed at the department of Biological Psychology of the VU University. It is a collection of standardized questions targeting multiple domains. The focus of the survey is on emotional and behavioral problems assessed by the Youth Self-Report (YSR), subjective wellbeing, lifestyle, exercise behavior, sedentary behavior, and family functioning.', 'wave_end_date_collection': '2006-01-01', 'wave_start_date_collection': '2005-01-01', 'wave_subject_codes': ['CC'], 'wave_title': 'YS_DHBQ18', 'wave_universe': '216'}, {'wave_ckan_id': 'c5467bc75c9c3b0964e9d728cd3d56f0', 'wave_cohort': 'NTR: Young Netherlands Twin Register', 'wave_cohort_ckan_id': '6f88a94b0bf79a8304ba604c655c08a9', 'wave_description': 'The main aim of this project was to explore to what extent genetic and environmental factors explain individual differences in brain development and cognition. The study was a part of a Dutch longitudinal study in which twins, their siblings and their parents were assessed at three years interval. This project included the measurement three years after baseline, around the 12th birthday of the twins. Data collection included psychometric IQ tests, a comprehensive neuropsychological testing protocol, and parental and self-ratings of behavioral and emotional problems. Physical maturation was measured through assessment of Tanner stages. Hormonal levels (cortisol, luteinizing hormone, follicle-stimulating hormone, testosterone, and estrogens) were assessed in urine and saliva. Brain scans were acquired using 1.5 Tesla Magnetic Resonance Imaging (MRI), which provided volumetric measures and measures of cortical thickness. Buccal swabs were collected for DNA isolation for future candidate gene and genome-wide analysis studies.', 'wave_end_date_collection': '2009-01-01', 'wave_start_date_collection': '2007-01-01', 'wave_subject_codes': ['CC'], 'wave_title': 'YC_BS2', 'wave_universe': '144'}, {'wave_ckan_id': '0fdd2cc18b1fa8eaad6f87bff8762f98', 'wave_cohort': 'NTR: Young Netherlands Twin Register', 'wave_cohort_ckan_id': '6f88a94b0bf79a8304ba604c655c08a9', 'wave_description': 'The purpose of this project was to investigate the relation between Diagnostic and Statistical Manual of Mental Disorders (DSM-IV) diagnosis of ADHD and Child Behavioral Checklist Attention Problems (CBCL-AP) scores. Twins were selected based on their maternal CBCL-AP scores at ages 7, 10 and 12. Twin pairs were selected if at least one of the twins scored high on AP (affected pairs), or if both twins scored low on AP (control pairs). In families that agreed to participate, the mother of the twins was interviewed by telephone with the Diagnostic Interview Schedule for Children (DISC-IV). Other surveys that were collected are the CBCL, SWAN and YSR. Mouth swabs were used to collect buccal cell samples, from which DNA was extracted.', 'wave_end_date_collection': '2005-01-01', 'wave_start_date_collection': '2002-01-01', 'wave_subject_codes': ['MC'], 'wave_title': 'YC_DSC', 'wave_universe': '120-156'}, {'wave_ckan_id': 'b3fb4888024a37412eef809351edb5eb', 'wave_cohort': 'NTR: Young Netherlands Twin Register', 'wave_cohort_ckan_id': '6f88a94b0bf79a8304ba604c655c08a9', 'wave_description': 'This project is the second measurement of a longitudinal study on the source of individual differences of cognition, attention, and executive functioning from preschool to young adulthood. This project included the measurement five years after baseline and additionally recruited new twin pairs and siblings of the twin pairs. Behavioral data were collected with surveys filled in by parents and teachers (Conners, Child Behavior Checklist (CBCL), Strengths and Weaknesses of ADHD symptoms and Normal behavior Scale (SWAN), Teacher Report Form (TRF)) or filled in by children themselves (Youth Self Report (YSR)). To measure pubertal development, children filled in the Tanner questionnaire. Neurocognitive abilities were assessed with computerized ANT tasks, Flanker, Simon and Stroop. IQ was assessed with WISC-R. DNA was collected to determine zygosity and for genotyping SNP’S at candidate gene loci. Saliva was collected to assess cortisol concentrations.', 'wave_end_date_collection': '2004-01-01', 'wave_start_date_collection': '2002-01-01', 'wave_subject_codes': ['CC'], 'wave_title': 'YE_ATTEF2', 'wave_universe': '144'}, {'wave_ckan_id': 'da08497f2ef7d7868f6ef93b9ad8d22f', 'wave_cohort': 'NTR: Young Netherlands Twin Register', 'wave_cohort_ckan_id': '6f88a94b0bf79a8304ba604c655c08a9', 'wave_description': 'Within the ADHD-MRI project, the genetic and environmental influence on ADHD related neurobiological changes were investigated in monozygotic twins. Twins were selected based on their Child Behavior Checklist Attention Problems (CBCL-AP) scores obtained in the regular YNTR survey waves and divided into three groups: discordant pairs (one affected, one unaffected), concordant pairs (both affected) and control pairs (both unaffected). To determine the presence of ADHD, mothers of the participants were interviewed with the Diagnostic Interview Schedule for Children (DISC-IV). Additionally, they filled in two behavioral questionnaires (CBCL and Strengths and Weaknesses of ADHD Symptoms and Normal Behavior (SWAN)). The twins filled in the Youth Self Report (YSR). Based on the outcome of the interview and questionnaires, twin pairs that were found eligible for the MRI experiments were invited. Both structural and functional MRI (color-stroop and flanker tasks) were performed. DNA was collected to confirm zygosity.', 'wave_end_date_collection': '2007-01-01', 'wave_start_date_collection': '2003-01-01', 'wave_subject_codes': ['MC'], 'wave_title': 'YC_ADHMRI', 'wave_universe': '180'}, {'wave_ckan_id': '4f838671420a1a6fdaa1ea4a1df602c4', 'wave_cohort': 'NTR: Young Netherlands Twin Register', 'wave_cohort_ckan_id': '6f88a94b0bf79a8304ba604c655c08a9', 'wave_description': 'This project is the fourth measurement of a longitudinal study on the development of intelligence and problem behavior (waves one and two not included in CD2). Intelligence is measured by the Dutch version of the Wechsler Intelligence Scale for Children-Revised (WISC-R). Cortisol and testosterone levels were measured in saliva, which was collected on two consecutive days. Pubertal development was measured with the Tanner self-report scales. Behavioral data was collected with the Youth Self-Report (YSR).', 'wave_end_date_collection': '2000-01-01', 'wave_start_date_collection': '1998-01-01', 'wave_subject_codes': ['MC'], 'wave_title': 'YE_COG12', 'wave_universe': '144'}] |
resources | [] |
tags | [] |
groups | [] |
relationships_as_subject | [] |
relationships_as_object | [] |
tracking_summary | {'total': 35, 'recent': 3} |