• measure Medical history - Health conditions and disease

    Study:Generation R
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Main Cohort  Early pregnancy Mid pregnancy 1 year 9-10 years
    0
    30 years
    The medical history questionnaire includes a list of general health conditions and disease.
    Created May 3, 2023 Updated May 3, 2023
  • measure Family Assessment Device (FAD)

    Study:Generation R
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Main Cohort  Mid pregnancy 1 year 5-6 years 9-10 years Covid questionnaires
    0
    30 years
    The McMaster's Family Assessment Device (FAD) evaluates families according to the McMaster Model of Family Functioning. The FAD is made up of seven scales which measure Problem Solving, Communication, Roles, Affective Responsiveness, Affective Involvement, Behavior Control and General Functioning.
    Created May 3, 2023 Updated May 3, 2023
  • measure Etch-a-sketch

    Study:Generation R
    Mode of collection:Observation
    Available measurements:
    Main Cohort  3 years 4 years 9-10 years
    0
    30 years
    The Etch-A-Sketch task is a cooperative learning challenge task that requires a parent to work together with their child in order to succeed. The parent and child are given one Etch-A-Sketch board and are instructed to use the board to copy a series of three designs that increase in complexity. The parent and child must work together as one controls the...
    Created May 3, 2023 Updated May 3, 2023
  • measure Cardiac and renal structure

    Study:Generation R
    Mode of collection:MeasurementsAndTests   Echo
    Available measurements:
    Main Cohort  6 months 2 years 5-6 years 9-10 years
    0
    30 years

    This dataset has no description

    Created May 3, 2023 Updated May 3, 2023
  • measure Brief Symptom Inventory (BSI)

    Study:Generation R
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Main Cohort  Mid pregnancy 2 months 6 months 3 years 9-10 years 13-14 years Covid questionnaires 17-18 years
    0
    30 years
    The Brief Symptom Inventory (BSI) consists of 53 items covering nine symptom dimensions: Somatization, Obsession-Compulsion, Interpersonal Sensitivity, Depression, Anxiety, Hostility, Phobic anxiety, Paranoid ideation and Psychoticism; and three global indices of distress: Global Severity Index, Positive Symptom Distress Index, and Positive Symptom Total....
    Created May 3, 2023 Updated May 3, 2023
  • measure Work demographics

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_3 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YE_FITNSS YS_DT YE_COG12 YE_COG18 YS_TRIP1_2 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Questions about working, hours of working, maternity/paternity leave, and type of profession
    Created March 28, 2023 Updated April 4, 2023
  • measure Zygosity (questionnaire)

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQ14 YS_DHBQ16 YC_DSC YC_ADHMRI YS_TRIP1_2 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    The Zygosity questionnaire asks parents of twin pairs about the resemblance between the twins to determine whether the twin pair is mono- or dizygotic. This questionnaire consists of 10 questions: 6 items about physical similarities between the twin and 4 items about confusion in identifying the twins by parents and others.
    Created March 28, 2023 Updated April 4, 2023
  • measure School Situation

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YS_DT YE_COG12 YE_COG18 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Questions about the school situation including the type of school the children attend, whether twins attemd the same/different school/class, whether the child has ever skipped or repeated grades, and truancy.
    Created March 28, 2023 Updated April 4, 2023
  • measure Medication Use

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire   Telephone
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTIONBB2 YC_ACTIONBB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP1 YS_TRIP2 YS_TRIP1_2 YS_TRIP3 YS_TRIP5
    0
    30 years
    Medication use incl. dosage, duration, and ATC code if available
    Created March 28, 2023 Updated April 4, 2023
  • measure Cantril ladder

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTIONBB2 YC_ACTIONBB3 YC_BS2 YE_FITNSS YS_TRIP3 YS_TRIP5 YS_TRIP7
    0
    30 years
    Subjective quality of life on a scale of 0 to 10.
    Created March 28, 2023 Updated April 4, 2023
  • measure Leisure Activities

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_3 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS1 YC_BS2 YC_DSC YE_ATTEF2 YC_ADHMRI YE_COG12 YS_TRIP4 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Questions about leisure time activities and hobbies and time spend on thereon
    Created March 28, 2023 Updated April 4, 2023
  • measure Physical Activities

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_3 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_FITNSS2 YE_ATTEF2 YC_ADHMRI YE_COG12 YS_TRIP4 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Questions about physical activity and sport
    Created March 28, 2023 Updated April 4, 2023
  • measure Zygosity (DNA)

    Study:NTR
    Mode of collection:MeasurementsAndTests   Biological sample/measurement
    Available measurements:
    Young Netherlands Twin Register  YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQ14 YS_DHBQ16 YC_ACTIONBB1_1 YC_ACTIONBB1_2 YC_ACTIONBB2 YC_ACTIONBB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF1 YE_ATTEF2 YE_ATTEF3 YC_ADHMRI YE_COG18 YS_TRIP1_2 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Zygosity typing based on micro-satellite markers, single nucleotide polymorphisms (SNP), or variable number (short) tandem repeats (VNTRs).
    Created March 28, 2023 Updated April 4, 2023
  • measure Demographics

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTIONBB1_1 YC_ACTIONBB1_2 YC_ACTIONBB2 YC_ACTIONBB3 YS_VAL YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF1 YE_ATTEF2 YE_ATTEF3 YC_ADHMRI YS_DT YE_COG10 YE_COG12 YE_COG18 YS_TRIP1 YS_TRIP1_2 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Demographic information, including age and year of birth, biological sex and gender, country and place of birth, current zipcode, nationality, religion, educational attainment, spoken laguages, and information on multiple birth.
    Created March 28, 2023 Updated April 4, 2023
  • measure Wellbeing

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_2 YS_3 YS_5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YC_ACTIONBB2 YC_ACTIONBB3 YS_TRIP3 YS_TRIP5 YS_TRIP7
    0
    30 years
    Measure that describe the wellbeing on a 5-point Likert scale
    Created March 28, 2023 Updated April 4, 2023
  • measure Health problems and treatments

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTIONBB2 YC_ACTIONBB3 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG12 YE_COG18 YS_TRIP1 YS_TRIP2 YS_TRIP1_2 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Questions about health problems, diseases and disorders, incl. handicaps, and treatments (also for mental health problems) and hospitalization
    Created March 28, 2023 Updated April 4, 2023
  • measure Anthropometry

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YE_ATTEF3 YC_ADHMRI YE_COG18 YS_TRIP1 YS_TRIP2 YS_TRIP1_2 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Anthropometric measurements incl. height, weight, body mass index (BMI), and body circumferences
    Created March 28, 2023 Updated April 4, 2023
  • measure Peabody Picture Vocabulary Task (PPVT)

    Study:YOUth
    Mode of collection:MeasurementsAndTests   Behavioral/cognitive task
    Available measurements:
    Baby and Child  3 years 6 years

    Child and Adolescent  9 years 12 years
    0
    30 years
    The Peabody-Picture vocabulary task (PPVT (Dunn and Dunn, 1981); for Dutch, the PPVT-III-NL (Dunn and Dunn, 2005)) is a widely used computer task to evaluate a participant’s vocabulary size for his or her age, and serves as a proxy of general language performance. It is normed for participants up to 90 years of age. Participants see on each trial an array...
    Created March 28, 2023 Updated March 30, 2023
  • measure Age

    Study:YOUth
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Baby and Child  20 weeks 30 weeks 0 months 5 months 10 months 3 years 6 years

    Child and Adolescent  9 years 12 years
    0
    30 years
    Age as withdrawn from the participant registration system. Age was calculated as the difference in the experiment date and the date of birth. For the mother and partner, age was rounded to whole years, for children from the Baby & Child cohort, age was rounded to weeks, and the age of children in the Child & Adolescent cohort was rounded to months.
    Created March 28, 2023 Updated March 30, 2023
  • measure CoRonavIruS health Impact Survey (CRISIS)

    Study:YOUth
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Baby and Child  20 weeks 30 weeks 0 months 5 months 10 months 3 years 6 years

    Child and Adolescent  9 years 12 years
    0
    30 years
    The CoRonavIruS health Impact Survey (CRISIS) assesses mental, behavioral, and physical health effects of the Covid-19 pandemic, as well as a range of pandemic-related and pre-existing risk and protective factors. The baseline version of the CRISIS assesses the following domains: background information about the household, physical and mental health prior...
    Created March 28, 2023 Updated March 30, 2023
You can also access this registry using the API (see API Docs).