• measure Anthropometry

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YE_ATTEF3 YC_ADHMRI YE_COG18 YS_TRIP1 YS_TRIP2 YS_TRIP1_2 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Anthropometric measurements incl. height, weight, body mass index (BMI), and body circumferences
    Created March 28, 2023 Updated April 4, 2023
  • measure Birth

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP1 YS_TRIP1_2
    0
    30 years
    Information on duration pregnancy, placenta and chorionicity, mode of delivery, complications around delivery, and incubator time.
    Created March 28, 2023 Updated April 4, 2023
  • measure Demographics

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTIONBB1_1 YC_ACTIONBB1_2 YC_ACTIONBB2 YC_ACTIONBB3 YS_VAL YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF1 YE_ATTEF2 YE_ATTEF3 YC_ADHMRI YS_DT YE_COG10 YE_COG12 YE_COG18 YS_TRIP1 YS_TRIP1_2 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Demographic information, including age and year of birth, biological sex and gender, country and place of birth, current zipcode, nationality, religion, educational attainment, spoken laguages, and information on multiple birth.
    Created March 28, 2023 Updated April 4, 2023
  • measure Family Assessment Device (FAD)

    Study:Generation R
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Main Cohort  Mid pregnancy 1 year 5-6 years 9-10 years Covid questionnaires
    0
    30 years
    The McMaster's Family Assessment Device (FAD) evaluates families according to the McMaster Model of Family Functioning. The FAD is made up of seven scales which measure Problem Solving, Communication, Roles, Affective Responsiveness, Affective Involvement, Behavior Control and General Functioning.
    Created May 3, 2023 Updated May 3, 2023
  • measure Food Frequency Questionnaire (FFQ)

    Study:Generation R
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Main Cohort  Mid pregnancy 1 year 2 years 8 years
    0
    30 years
    A food frequency questionnaire (FFQ) consists of a finite list of foods and beverages with response categories to indicate usual frequency of consumption over the time period queried.
    Created May 3, 2023 Updated May 3, 2023
  • measure Health problems and treatments

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTIONBB2 YC_ACTIONBB3 YC_BS1 YC_BS2 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG12 YE_COG18 YS_TRIP1 YS_TRIP2 YS_TRIP1_2 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Questions about health problems, diseases and disorders, incl. handicaps, and treatments (also for mental health problems) and hospitalization
    Created March 28, 2023 Updated April 4, 2023
  • measure Medical history - Health conditions and disease

    Study:Generation R
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Main Cohort  Early pregnancy Mid pregnancy 1 year 9-10 years
    0
    30 years
    The medical history questionnaire includes a list of general health conditions and disease.
    Created May 3, 2023 Updated May 3, 2023
  • measure Medication Use

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire   Telephone
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_2 YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTIONBB2 YC_ACTIONBB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF2 YC_ADHMRI YE_COG18 YS_TRIP1 YS_TRIP2 YS_TRIP1_2 YS_TRIP3 YS_TRIP5
    0
    30 years
    Medication use incl. dosage, duration, and ATC code if available
    Created March 28, 2023 Updated April 4, 2023
  • measure Pregnancy - Course Duration

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YE_COG18 YS_TRIP1 YS_TRIP1_2
    0
    30 years
    Questions about the duration and course of the pregnancy
    Created March 28, 2023 Updated April 4, 2023
  • measure Pregnancy - Problems

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_DSC YC_ADHMRI YS_TRIP1_2
    0
    30 years
    Questions about problems during pregnancy such as eclampsia, iron deficiency, or twin-to-twin transfusion syndrome (TTTS)
    Created March 28, 2023 Updated April 4, 2023
  • measure Pubertal Development

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_ACTIONBB1_1 YC_ACTIONBB1_2 YC_ACTIONBB2 YC_ACTIONBB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YC_ADHMRI YE_COG18 YS_TRIP1_2
    0
    30 years
    Questions about pubertal development including breast growth, menstruation, shaving, deepening of voice, and growth spurts
    Created March 28, 2023 Updated April 4, 2023
  • measure Supplement use

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YC_ACTIONBB2 YC_ACTIONBB3 YE_COG18 YS_TRIP1 YS_TRIP1_2
    0
    30 years
    Questions about nutritional supplement use by mother during pregnancy and vitamin supplementation use of children, including formation regarding type, frequency, and duration of vitamin supplementation
    Created March 28, 2023 Updated April 4, 2023
  • measure Work demographics

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_1 YS_3 YS_TRF5 YS_7 YS_TRF7 YS_10 YS_TRF10 YS_12 YS_TRF12 YS_DHBQP YS_DHBQ14 YS_DHBQ16 YS_DHBQ18 YC_BS2 YE_FITNSS YS_DT YE_COG12 YE_COG18 YS_TRIP1_2 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Questions about working, hours of working, maternity/paternity leave, and type of profession
    Created March 28, 2023 Updated April 4, 2023
  • measure Zygosity (DNA)

    Study:NTR
    Mode of collection:MeasurementsAndTests   Biological sample/measurement
    Available measurements:
    Young Netherlands Twin Register  YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQ14 YS_DHBQ16 YC_ACTIONBB1_1 YC_ACTIONBB1_2 YC_ACTIONBB2 YC_ACTIONBB3 YC_BS1 YC_BS2 YC_BS3 YC_DSC YE_FITNSS YE_ATTEF1 YE_ATTEF2 YE_ATTEF3 YC_ADHMRI YE_COG18 YS_TRIP1_2 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    Zygosity typing based on micro-satellite markers, single nucleotide polymorphisms (SNP), or variable number (short) tandem repeats (VNTRs).
    Created March 28, 2023 Updated April 4, 2023
  • measure Zygosity (questionnaire)

    Study:NTR
    Mode of collection:SelfAdministeredQuestionnaire
    Available measurements:
    Young Netherlands Twin Register  YS_3 YS_5 YS_7 YS_10 YS_12 YS_DHBQ14 YS_DHBQ16 YC_DSC YC_ADHMRI YS_TRIP1_2 YS_TRIP3 YS_TRIP4 YS_TRIP5 YS_TRIP7 YS_TRIP10 YS_TRIP12
    0
    30 years
    The Zygosity questionnaire asks parents of twin pairs about the resemblance between the twins to determine whether the twin pair is mono- or dizygotic. This questionnaire consists of 10 questions: 6 items about physical similarities between the twin and 4 items about confusion in identifying the twins by parents and others.
    Created March 28, 2023 Updated April 4, 2023
You can also access this registry using the API (see API Docs).